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Toronto 2009 International Carcinoid NeuroEndocrine Conference

Event Overview
NeuroEndocrine Tumours (NETs) are complex multi-system cancers which can be difficult to diagnose, treat and manage. Often required are the diverse skills and coordinated efforts of oncologists, endocrinologists, surgeons, pathologists, nuclear medicine specialists, radiologists and others. The expertise of a multidisciplinary team accessing a comprehensive range of modalities may be required to identify the primary tumour, the extent of overall tumour burden and highly specialized treatments such as radiopharmaceuticals. As a result, the challenge from the patients' perspective is how best to access the medical help necessary. An emerging Canadian practice is that Canadian patients diagnosed with NETs are referred for consultation to specialized cancer centres with a multidisciplinary team such as those in London Ontario, and Calgary, Alberta. In countries other than Canada we understand that Centres of Expertise or formal Centres of Excellence exist in New Orleans, Iowa City, New York and Los Angeles (USA), as well as London (UK), Uppsala, (Sweden), Rotterdam (Netherlands), Paris (France), Basel (Switzerland) and Bad Berka (Germany). Canadian mined and processed radioisotopes are used internationally to diagnose and treat NETs; however they are not regulated for patient use in Canada. Canadian NET patients and their multidisciplinary, multimodal teams alike would benefit from a National Cancer Strategy, Orphan Disease Policy, Drug Formulary (a list of prescription medications that a health plan will pay for) and a NET Registry. Collectively, these would serve an informed 21st century regulatory framework and related process for seamless approvals. It should be noted that as yet there are no formally designated and resourced Canadian Centres of NET Excellence/Expertise. On 24-25 October 2009, the Carcinoid Neuroendocrine Tumour Society Canada held a conference at The Crowne Plaza Hotel (Don Valley), in Toronto, Canada. The theme of the event was "NeuroEndocrine Cancers: The Case for Research, Education, and the Expert Team" and the focus was on multi-disciplinary collaboration in diagnosis and treatment. The weather was not very favorable, yet some 70 persons attended, including physicians, patients and family caregivers. Over two days, there was a full programme of presentations by Canadian and International physicians. On the second day, there was a workshop among participants designed to "Identify Best Practices and Build a Strategic Vision for 21st Century NET Patient Care". For this workshop, participants were divided into four workgroups, with the leader of each workgroup reporting the findings and concensus of his/her group. Medical professionals attending this event received 8.5 hours of CME/AMA credits, awarded by The Royal College of Physicians and Surgeons of Canada at University of Toronto. These recordings were made to share the information more widely. Event photos are available for viewing on Flickr.

Recordings Following are recordings of the various presentations.

Introductory Remarks Presenter(s): Maureen Coleman (President, CNETS Canada); Jim Kormos (Vice President, CNETS Canada) Duration: 8 minutes Note: Audio quality is poor throughout this recording. View: broadband video \| standard video \| audio (MP3) The Expert Team: A Multidisciplinary Approach to Cancer Care Presenter(s): Dr. Mary Gospodarowicz (Medical Director, Cancer Program, Princess Margaret Hospital and University Health Network, and Regional Vice President of Cancer Care Ontario, Toronto, Ontario) Duration: 24 minutes Note: Due to a technical problem, audio is choppy for the first 20 minutes. View: broadband video \| standard video \| audio (MP3) The Spectrum of Neuroendocrine Tumours Presenter(s): Dr. Simron Singh (Medical Oncologist, Odette Cancer Centre, Sunnybrook Health Sciences Centre, Toronto, Ontario) Duration: 16 minutes Note: Audio quality is poor for the first 1-2 minutes only. View: broadband video \| standard video \| audio (MP3) Diagnosis: The Role of Nuclear Medicine Presenter(s): Dr. Al Driedger (Department of Nuclear Medicine, London Health Sciences Centre and Professor Emeritus: Nuclear Medicine, University of Western Ontario, London, Ontario) Duration: 34 minutes View: broadband video \| standard video \| audio (MP3) Diagnosis and Surveillance: The Importance of Circulating Markers Presenter(s): Dr. Thomas O'Dorisio (Professor of Internal Medicine and Director, Neuroendocrine Tumor Clinic Program, Holden Comprehensive Cancer Center, University of Iowa, Iowa City, United States) Duration: 45 minutes View: broadband video \| standard video \| audio (MP3) Surgery: The Expert View #1 Presenter(s): Dr. Daryl Gray (Surgical Oncologist, London Health Sciences Centre, London, Ontario) Duration: 19 minutes Note: This recording ends 6-7 minutes before the presentation is complete. View: broadband video \| standard video \| audio (MP3) Surgery: The Expert View #2 Presenter(s): Dr. Natalie Coburn (Surgical Oncologist, Odette Cancer Centre, Sunnybrook Health Sciences Centre, Toronto, Ontario) Duration: 13 minutes View: broadband video \| standard video \| audio (MP3) Surgery: Audience Question & Answer Presenter(s): Dr. Sherif Hanna (Head, Surgical Oncology, Odette Cancer Centre, Sunnybrook Health Sciences Centre, Toronto, Ontario); Dr. Daryl Gray; Dr. Natalie Coburn Duration: 10 minutes View: broadband video \| standard video \| audio (MP3) Medical and Radiation Therapies Presenter(s): Dr. Thomas O'Dorisio (Professor of Internal Medicine and Director, Neuroendocrine Tumor Clinic Program, Holden Comprehensive Cancer Center, University of Iowa, Iowa City, United States) Duration: 28 minutes View: broadband video \| standard video \| audio (MP3) Quality of Life Issues Presenter(s): Dr. Joy Ardill (Professor of Medicine, Queens University and Consultant Clinical Scientist, Royal Victoria Hospital, Belfast Trust, Belfast, Northern Ireland) Duration: 21 minutes View: broadband video \| standard video \| audio (MP3) Patients' Perspectives on the Difficulties Diagnosing Carcinoid-NeuroEndocrine Tumours: A Qualitative Study Presenter(s): Dr. Deana Midmer and Team (Associate Professor and Research Scholar, Department of Family and Community Medicine, Faculty of Medicine, University of Toronto, Ontario) Duration: 20 minutes View: broadband video \| standard video \| audio (MP3) CNETS Research: The 360 Degree from Bench to Bedside Approach Presenter(s): Prof. Girish Shah (Chief, Laboratory for Skin Cancer Research at the CHUL-CHUQ Hospital Research, Associate Professor, Faculty of Medicine Laval University, Quebec City, Quebec) Duration: 23 minutes View: broadband video \| standard video \| audio (MP3) Molecular Imaging of Neuroendocrine Tumours Presenter(s): Dr. Kjell Oberg (Professor of Endocrine Oncology, Medical Faculty, Uppsala University and Chairman of Centre of Excellence of Endocrine Tumours, University Hospital, Uppsala, Sweden) Duration: 23 minutes View: broadband video \| standard video \| audio (MP3) Discovery of Novel Circulating Markers Presenter(s): Dr. Joy Ardill (Professor of Medicine, Queens University and Consultant Clinical Scientist, Royal Victoria Hospital, Belfast Trust, Belfast, Northern Ireland) Duration: 29 minutes View: broadband video \| standard video \| audio (MP3) Animal Models of Carcinoid NETs: Opportunities to Examine Therapeutic Options Presenter(s): Prof. Girish Shah (Chief, Laboratory for Skin Cancer Research at the CHUL-CHUQ Hospital Research, Associate Professor, Faculty of Medicine Laval University, Quebec City, Quebec) Duration: 25 minutes View: broadband video \| standard video \| audio (MP3) Cancer Genetics and Predisposition to Disease (includes brief Q&A) Presenter(s): Dr. Shereen Ezzat (Head Endocrine Oncology Site Group, Princess Margaret Hospital University Health Network, Toronto, Ontario) introduced by Dr. Sylvia Asa (Pathologist-in-Chief, Medical Director, Laboratory Medicine Program, University Health Network and Senior Scientist, Ontario Cancer Institute and Professor, Laboratory Medicine and Pathology, University of Toronto, Ontario) Duration: 50 minutes View: broadband video \| standard video \| audio (MP3) Carcinoid-Neuroendocrine Tumours in 2010: Where have we been, where are we, and where are we going? Presenter(s): Dr. Kjell Oberg (Professor of Endocrine Oncology, Medical Faculty, Uppsala University and Chairman of Centre of Excellence of Endocrine Tumours, University Hospital, Uppsala, Sweden) Duration: 64 minutes View: broadband video \| standard video \| audio (MP3)



About CNETS Canada The Carcinoid-NeuroEndocrine Tumour Society-Canada (CNETS Canada) was formed in 2007 to assist the Canadian patient and physician community to better understand diagnostic and treatment options for neuroendocrine cancer.

Event Sponsors

Novartis Oncology

Covidien

Pfizer

Lantheus Medical Imaging

Photo Credits
Toronto skyline from an unknown collection (if it's yours, write to us). Event photos on Flickr by Dr David Coleman.

Donate
Please donate to the Carcinoid-NeuroEndocrine Tumour Society of Canada to support education and awareness programs such as these recordings.

Podcasts
You can download all the conference MP3 audio files for enjoyment on your iPod or mobile phone. Just copy the link below into iTunes or any similar tool using the 'subscribe to podcast' feature, let the audio files download to your PC's hard disc and then sync them with your mobile device.
Audio Podcast Listing (RSS)